So I thought we had reached a magic moment here today .... 13 ounces of Resource JFK, 13 baby spoons of yogurt. Maybe 13 is a magic number for us? Maybe I should play number 13 in roulette (I know nothing about gambling ... can you play 13 in roulette)?
BUT just when I was starting to feel better about this digestive turn about .... Eliza decides that developing diarrhea would really top off my day. So there you have it. And here I thought the biggest dilemma I was going to have tonight was whether the chocolate or strawberry pediasure would blend better with my furnishings when it came back up in the middle of the night (normally I go with French Vanilla during the vomit-fests since it blends best with my decor, but I've run out).
Have I said "oye" today?
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Hey Anne,
ReplyDeleteJust a thought: we're experimenting with Goat's Milk with Hallie and it seems to be helping. We're fortifying it with Enfamil AR (which always was useful during the breast milk days) to the tune of 2 scoops per 7 ounce bottle, plus a bit of karo syrup. That brings it up close to 30 calories an ounce. It seems to be helping with the constipation/delayed gastric emptying issue---even when her best little friend toppled her today the food she ate two hours earlier that came up was clear --- no real food but digested mucousy stuff. This was UNHEARD of when she was on Nutren and Pediasure. And she had two big poops today, which was her old pattern. It could be the Reglan kicking in, but my money's on the goat milk. May be worth a try for Eliza. Available at Wholefood Market, of course (and maybe at Food Emporium or Gourmet Garage or somewhere like that in Manhattan). Of course, it's a fortune (about 7 dollars for a half gallon), but pediasure ain't cheap, neither. Anyway, I thought I'd pass along our recent innovation.
(And no other vomiting or even big burps today; just one small wet burp without food in it. Major progress, and we're hoping it sticks through the night).
Thanks Abby ...
ReplyDeleteSee this firms up my idea that moving back to Saba is the way to go, we have more goats than people and an unlimited supply of goat's milk! And there also seems to be an excessive amount of karo syrup on the island ... we're big on baking.
So far two nights now with no vomiting. I think the pneumonia-mucous-puking is over. Also Eliza's pedi changed her dosage of prevacid after I talked to him about the dose being low. (I could care less if the GI is annoyed at this). For the past week I've been giving a 15mg solutab at night and half a tab in the morning. I also don't give her the Resource JFK after 6 pm so maybe that's helping the pukes.
Despite this improvement on the vomit front Eliza is still only taking in about 14 or 15 ounces of formula a day which translates to about 650 calories and one 2.5 ounce container of yogurt a day, for another 110 calories. She absolutely refuses to drink/eat anymore than that. She is pooping fine, her usual once a day so that's not contributing to the problem.
The feeding therapist has even run out of ideas at this point. She has been getting feeding therapy for almost a year now and while there have been small steps in the right direction (eating yogurt, nibbling on a cookie) there has been no major improvement.
Well, the good news is that Hallie seems to love the taste of the goat milk, so we're packing our bags and heading off to Saba with you.
ReplyDeleteThe bad news is that if it's too thin, she aspirates it and we actually had our first (and I hope last) case of nasopharyngeal reflux last night. Tremendously scary. So we need to still thicken the brew some more (the aspiration is likely due to Hallie's paralyzed vocal cord and laryngomalacia...sometimes it feels like we're caught between a rock and hard place). The pooping has been GREAT on the goat milk or reglan (four times in the last two days; back to the old way she pooped on breast milk) but with more Simply Thick added in to the mix, who knows?
Anyway, we really hope this works because if it doesn't, all of the alternatives are much less attractive than just cleaning up some vomit.
While you are making plans to go to Saba, can you make room for me?
ReplyDeleteWe don't have any real issues that can be solved by bush medicine, but it sounds like a beautiful place. Let me know when we are leavin, I'll have my bags packed.
Even if you have no puking issues you are more than welcome to join us on the Bush Medicine Tour 2008! Maybe we should plan a group vacation? Just think how we wouldn't have to explain to everyone what an adjusted age is! And no one in our group would gag at the sight of some baby vomit! Here's the link to the Saba tourism site for those who are curious ...
ReplyDeletehttp://www.sabatourism.com/
Ok, I checked out the link. Now I am REALLY ready to go! It is absolutely gorgeous. Maybe we should have a PBM reunion there!
ReplyDeleteI totally agree on the reunion idea...I also checked the website and was very much enthralled with the idea of all of us getting our kids together on one of those boats over to the island...We could blame the puking on sea sickness.
ReplyDeleteBut seriously, do you think the Saba chamber of commerce wants to host micropreemie reunion 2008.
I think that all of the problems of prematurity could be very nicely forgotten (or at least numbed) by some sunny, 80 degree weather, a little stomach tea, and a cocktail or two. Make mine more than 2 ounces, though (we are still in the 4 ounce stomach range, but declining daily!)
Actually I have thought about the idea of a preemie reunion on Saba for next year. There is a small hotel with about 10 cottages, each with a kitchen and can sleep at least four. It is near "town" and there is a nice pool too. Not that anyone would need a doctor but the two new doctors are a very nice Dutch couple who seem to know the basics at least. We wouldn't have to torture ourselvs with the boat, there is a small plane with a 12 mintue from St. Maarten, we could also charter a private plane that holds ten adults that would cost about the same as Winair would. The island is pretty safe (I once left my hosue unlocked for 3 months and it was fine) and responsible babysitters are pretty abundant.
ReplyDeleteJust some thoughts.....